The Sam Roberts Family Fund | Niemann-Pick Disease Type C | Cycle 4 Sam |

This website is dedicated to the memory of our beautiful son, Samuel George Roberts, who passed away on April 19 , 2005 at the age of 4 years 10 months, after a courageous battle with Niemann-Pick Disease Type C, a rare neurological degenerative disease.

Roberts Family YEAR	Roberts Family YEAR

 
This website is dedicated to Sam, for the courage he showed every day and for the joy he brought to so many, and to all the people who supported Sam and our family in some way throughout his illness.
 
It is also dedicated to all families who have terminally ill and chronically sick children. It is hoped that families who visit this website will understand that, despite the terrible sadness, they will embark on an incredible journey with their child which will also bring much joy.
 
In this website you will read Sam’s story and share in the journey of his life.
 
Sam’s life has inspired our family and friends to set up “The Sam Roberts Family Fund”, supporting the Palliative Care Service of the Adelaide Women’s and Children’s Hospital Foundation.
 
Since “The Sam Roberts Family Fund” was set up in 2006 over $130,000 has been raised for designated projects within the Paediatric Palliative Care Service. These projects include the employment of an Art Therapist and the construction of a Family Unit within the Hospital for children with terminal illnesses and their families.
 
We are thrilled to announce the “Sam Roberts Family Unit” was officially opened on Sam’s 8th birthday, the 30th June 2008.