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Part 1:Pre Diagnosis | Part 2: Operations | Part 3: After Operations | Part 4: Sam's Diagnosis | Part 5: Post Diagnosis | Part 6: A Special Time

Samuel George Roberts was born on the 30th June 2000 at the Burnside War Memorial Hospital in Adelaide, South Australia. Sam’s parents are Martin and Michelle, and he has a big sister Lucy, who is now 8, and a little brother Charlie, who is now 3.

Sam was the cutest little boy you have ever seen with his beach blonde hair and perennial happy face!

Sam was slow to develop his motor skills and when he still wasn’t crawling at age 15 months we had him assessed at the Adelaide Women’s and Children’s Hospital.

In July 2002, after numerous tests and two major operations Sam was eventually diagnosed with Niemann-Pick Diseae Type C.


Part 1:Pre Diagnosis

Part 2: Operations

Part 3: After Operations

Part 4: Sam's Diagnosis

Part 5: Post Diagnosis

Part 6: A Special Time